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| Wednesday, September 08, 2010 |
| 2/20/2006 7:53:22 PM | ||
| to those with Meniere's disease. I have had the tube placed in my affected ear and gentamycin infused during surgery and once after surgery. At that time, I told the doctor that I would not allow him to inject the med again because I was quickly losing my hearing. He assured me it was swelling due to surgery but I did not back down. 7 months later I had a second surgery to repair the bone in my ear that the gentamycin had eroded. This procedure was supposed to decrease dizziness; it did not. | ||
 KAREN MAYS |
HAYDEN Alabama USA |
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| 2/20/2006 4:45:31 AM | ||
| this site is the one light in a long dark tunnel | ||
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harley gillies |
stornoway w.isles u.k. |
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| 1/23/2006 9:09:45 PM | ||
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Been a victim of gentamycin toxicity since 2/02. Have alot of serious problems as a result of this and would like to share my problems with others. |
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Pete Rosko |
Naples FL USA |
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| 1/19/2006 7:01:46 AM | ||
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Good to see a web site for 'Wobblers'. I certainly am one of my own decision. I have had Menieres disease for 12 years, bilateral. In 1997, I began treatment at the Shea clinic in Memphis. I regained most of my hearing in the left ear. However, as the disease progressed, the attacks became more severe and frequent. Until there was never a time I was out of an attack. The 'drop' attacks were the worst. The violent vomiting lasting up to 13 hours. Treatment (chemical laby) for the left ear reduced the symptoms for a few years until the right ear caught up. I have had 9 procedures performed on my ears. Chemical laby with Streptomycin (120mg into the ear). This has finally brought relief. Yes, I still have the attacks constantly. However, the severe nausea is under control with light doses of phenergan. Balance is gone in both ears and I am forced to use a walker to get around. Best decision I ever made! My quality of life was zip before. Now, I can do some things. Cars still bother me. Crowds confuse my sight and balance. Nighttime is impossible. But overall, much better. No more drop attacks. Plenty of side effects from 9 years of steroids, but it is a trade off. Be glad to talk to others with Menieres. Thanks! |
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Ronald Zapf |
Cordova TN USA |
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| 11/27/2005 2:53:55 AM | ||
| I was recently prescribed gentamicin intravenuously by my urologist. My physician concurred and it was arranged for another home health care organization to administer the medication. Because I live 100 miles from their area they, in turn, sub-contracted another home health agency to handle the weekly dressing changes. I was told at the get-go that genatmicin can cause either a ringing in the ears or kidney failure. I was given blood tests once a week. After almost 5 weeks, kidney damage was indicated and my dosage was halved (Friday). That next Sunday I woke with extreme dizziness and enhanced ringing. After a few days and alot of research on the net I finally realized that I was probably a victim of a toxic reacton to gentamicin. As of yet I still have to be diagnosed by the medical community but it seems at this late date that I too am a 'Wobbler' and probably will be for a long time. It looks like this may be a place for me to vent. | ||
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Bill Houghton |
Twentynine Palms CA USA |
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| 10/19/2005 6:18:19 PM | ||
| My Father has just found out that he has gentamicin overdose which is affecting him a great deal, medication was not properly monitored, anyone with same situation please e-mail me,,,i need info a.s.a.p thanks | ||
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Val Martin |
Oxdrift Canada |
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| 10/19/2005 10:24:28 AM | ||
| Now I have a name, I am a 'Wobbler'. My wobbling goes back to 1978, I was given a drug called Garamycin I developed an internal infection after having a C-section. I was given too much at that time I did lose 20% of my hearing on my left side. I did not think so much about it as being a new mom I had many other things to worry about. Through the next years I had dizzy blonde moments I called it. I would get light headed, many times losing my balance and falling. Eight years after receiving the garamycin I started losing my hearing and saw a doctor who diagnoses was that I pretty soon would have to wear a hearing aid, Not me I was only 30 years old at the time. I let 5 years go by and the hearing problem got so bad I seek help from a doctor again. Immediately he seemed to know what I had. He ordered an MRI within a couple days I was diagnosed with an Acoustic Nueroma brain tumor!! Within a month I had surgery 13 1/2 hours later removing 70% of the tumor. That was a real life change for me. I lost hearing on my left side, paralyzed the left side of my face, lost left side eye closer. That was 12 years ago, I was challenged to survive! I continued to work and raise 2 great children, real reason for not giving up! In the last year and a half I have had some blackouts, still lose my balance all the time. My dizzy blonde attitude is now a part of my life style, not that I like it but I am a survivor. I would like to hear from others that may have had the same or similar experience. Pity parties don't work for me. | ||
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Dianne Decker |
Chandler AZ USA |
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| 10/18/2005 12:47:09 PM | ||
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My son-in-law has Primary Immunodeficiency. Because of this, he gets pneumonia frequently. He was given gentamicin. He now has gentamicin toxicity and is a wobbler. This 53 year old man is trying to sue those responsible for this condition, the doctor who had no experience with gentamicin, the nurse who administered it, also who had never administered it before and recorded his peaks and troughs in an untimely manner.and the pharmacist who doubled the dosage based on her erroneous notations. If there is any Wobbler who has successfully sued anyone involved with gentamicin toxicity, please contact me. No amount of money can ever restore what he has lost, but someone MUST alert the people to the dangers, make them aware of the lack of training and attention given to the administration of this drug and possibly prevent someone else having to suffer it's results.Thank you. I pray for all Wobblers every day! |
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Roberta Owens |
Fort Myers Fl USA |
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| 10/17/2005 4:39:14 AM | ||
| Menieres disease sufferers...please contact me.. I am very scared to try some of the treatments. I am also very scared of the M.D. 'producing' an episode. Have had it for 3 years...just been living with it and would like to see what others have found useful. Thanks Johnny | ||
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Johnny |
Gun Barrel City Texas USA |
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| 10/16/2005 1:33:19 AM | ||
| I eas diagnosed with mutiple sclerosis approxiately 10yrs ago and I have been losing my balance steadly since. It has has gotten really bad in the last 3 yrs, is any one else out there having the same problems? I am finding it harder to walk. I have even been stopped by the police on multipe occasions thinking I was drunk. | ||
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Charles Gerris |
Carlstadt NJ USA |
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